I have a 2 1/2 year old who was born with a gastrochisis, he had his ileocecal valve removed. Hoping to find someone with similar situation to talk to.
My babies didn't have this, I actually had to do a little research to find out what it was. That's so awful! I hope you do find a companion on here who shares your story. *hugs* You're in my thoughts, that had to have been, and still I'm asuming, really rough for your family.
Hi, I'm a foster mother from the UK and care for a 3 year old who was born with Gastrotisis and Bowel Artesia. She was left with only 32cm of bowel and remained on TPN until she had bowel lengthening (Bianci) procedure carried out. She eventually left hospital when she was 22 months old to our care.
Please feel free to contact me if I can give you any advice or support.