View Full Version : down syndrome
06-11-2009, 10:49 AM
hi everyone well just trying to find other parents who have down syndrome children i have a 5 month old and he is so adorable
06-12-2009, 01:23 PM
Hi i have a child with d.s.and he has 3 brother
06-12-2009, 01:31 PM
this is my spacial boy
06-16-2009, 09:59 PM
hello my daughter has Down Syndrome, she is 7 months
06-17-2009, 03:58 PM
ok sorry girls it wouldnt let me write back for a while well i am happy to hear from yall so ok how are the babies i do have to say that we are blessed he is one of the best cases of ds he doesnt have any heart trouble or hearing or sight he is 5 months and rolling over and trying to sit up well just wrie me if u can at jessequejames08 and thats at yahoo
06-20-2009, 11:46 AM
Hi. I have a 20-month old son who has Down syndrome. I blog about him at http://billandria.blogspot.com. I've met other wonderful parents who have kids with Down syndrome through blogging too and I have them listed in my blogroll.
06-22-2009, 11:55 AM
I have a 10 month old son, Evan. He is wonderful and we are learning from him every day. He can sit up now (yay), but is not yet able to pull up to a sitting position. He rocks back and forth on his hands and knees.
06-22-2009, 11:56 AM
Here's my Evan.
06-23-2009, 10:19 AM
I have a 19yr old with Down Syndrome and he is the best thing that happened to our family
06-23-2009, 10:21 AM
how adorable taylor is trying to sit up and he will be 6 months this month u know how they do when they r laying down its so cute and he is rolling over some and even though his arms arent strong enough he is trying to scout around but im sure we still have a coup;e of months tilll we actually get it lol
06-23-2009, 10:23 AM
thats awesome so if i can ask does he know he is different i mean did kids give him a tuff time in school im so worried bout that i know how mean kids can be u know
06-25-2009, 02:36 PM
I have read what each of you have said and I think it is so wonderful that each of you mom's love and adore your children the way that you do! No doubt they will face hardships different from most children, and it is such a blessing that they have you to support them.
I would like to know if any of you knew if your baby had down syndrome before they were born - like via testing or an ultrasound - or if you were surprised with it at birth...
Also I always hear it has to do with the mother's age - older women have a higher risk. Do you find that is true?
06-26-2009, 01:13 AM
hi im 23 and i have research it after i had him and with the grow numbers of younger moms the studies r changing on older women being more at risk my dr says he didnt know b4 he was born looking back i think he knew something was wrong i didnt have any test done bc i have two healthy older children and the dr never said we should do one but he did do alot of ultrasounds and i was under close observaion ofcourse i also had high blood pressure well soo i have my doubt on the dr but thats for another day but i do have to say that i saw something diff in the pict and forgot to ask when i was with the dr and he kicked different like it wasnt as hard and it would be three or four kicks close together like a twitch and then nothing for awhile i dont know thats the beest way i can explain it yes i was very shocked when i saw him i saw it with out dr saying anything i still sometimes cant beleive it dont get me wrong i see the blessing but there are days were i ask my slef when am i going to wake up from this dream and all i can do is hold back the tears its hard but there are far more good days and all i do is smile and think wow is this y im here
06-28-2009, 02:07 PM
Hi, I was 20 and my husband was 21 when our son Henri was born in August of last year. I found out our son had downsyndrome when I was 21 weeks pregnant while my husband was out to sea. I had an amnio done at 19 weeks because my first ultrasound (at 15 weeks) showed two "flags" for DS. his pinky fingers were short and his neck was measuring a little thick. my dr left the decision to get the test done up to me and i went with it so that i could see several better drs in jax and deliver at a better hospital too. now he's almost eleven months old and i thank God for him everyday and his health (our son's never been sick, not even a cold and has no heart, thyroid or other issues so far) he's working on the crawling right now but is mostly rolling around. and also, i've met a lot of other moms who have babies with downsyndrome and they're all under the age 25.
08-27-2009, 09:59 PM
hi, I'm a mother of 4. 3 girls ages 25,24, and 4. I have 1 son 21 and he has down syndrome. All my children are gifts and i thank god everyday for each one.
All of you new moms of down syndrome babbies have so much to look forward too.
Everyday he does something to make me smile. The other day i came home from work to a clean house and he made dinner. (with alittle help from big sis)He always cleans the house, but dinner was something new .
08-28-2009, 04:34 PM
aww that is so sweet i am already amazed everyday by the things he does there are all gifts and i love them all but taylor is just so sweet he smiles just bc he saw me and i love it
08-28-2009, 06:06 PM
Hi, I'm a new member/lurker. *big wave hello*
I'm also a "new Mom" (we don't use the term step-mom) to an awesome 25 yr old DD, Codie. She too has Down's Syndrome and I love her to pieces!! Codie is the most awesome DD, big sister, and friend, anyone could ask for. She "loves her baby sister" Melly, and she tells her all the time (with big sister kisses too).
Needless to say, her 21 month old "baby sister" is the typical 'wild child'. She's easily excited, very busy, and can be quite aggressive. However... I had no idea how well-behaved, calm, and extremely gentle she could be, until I see her interact with Codie. Watching them together has brought me to tears. The love and kindness is so pure it touches the heart.
My new DD sets a fine example for anyone she interacts with. I am proud to be her new Mom. She is a blessing in every way.
She is also beautiful, independent, reliable, hard working, eager to please, and a fantastic shopper. :) She never let's me forget one thing on my list, and she hasn't missed a day of work at her part-time job in more than 5 years. She likes to keep to her schedule (ya gotta respect a girl who knows what she wants)! she loves country music more than anyone I've ever met, and she is just a joy to be with. She's my "cool chickie"!
08-28-2009, 07:50 PM
hi, some of you are worried about other kids picking on your child with downs. My son is 21 and went to regular school with kids his own age. He went on the bus. He was teased sometimes. But never bullied. The kids always looked out for him. They were so amazed because they thought he was so different, but they found out he wasn't as different after all. At his high school graduration when his name was called and he walked across the stage his senior class gave him a standing O. I was so proud. He was so happy.
When my son was young all I wanted for him was what all the other kids had. I had to fight sometimes for his rights. I did not want him in sp.ed and that was a big fight that I won, or should i say my son won.He went K-12 in reg.ed. He did have an aide with him to adapt the school work.
I always made sure he was dressed in the cool clothes and had whatever hair cut that was in style. he is still so cool.
So relax and just enjoy your babbies.
09-03-2009, 11:55 AM
thanx shelly for that story it brought me to tears just knowing that he has had a wonderful life i know im not alone but there are so many days where i feel like i am i can only pray that taylor has classmates like urs had thanx so much
09-24-2009, 12:52 AM
I think chldren with down syndrome are very precious and beautiful.
07-09-2010, 12:52 AM
Hi everybody. I am 31 and just had a D.S. baby boy on June 1. It was a total surprise, although looking back the signs were all there. I thought he looked different in my 20 wk ultrasound, his features were very round. but being a regular sono, its hard to really tell. Then I had 2 3D ones and I though "wow he doesnt look anything like the rest of my kids" but I chalked it up to just looking different. We also caught him sticking out his tongue in the 3D but we just said awe how cute. After an emergency C section, the Neonatologist came and told me he was a downs baby. I thought, oh ok I can handle this, but the he started telling me about all the health issues that come with it and we started freaking out.After a week in the NICU he was airlifted to UC Davis with suspected Hirschsprungs. As you know and can imagine I was devistated. This wasn't part of my plan, haha. I cried the whole time I was in the hospital after my c section. I have 3 other kids and couldnt stop thinking that I had made a decision that had ruined all our lives.
After a total of 3 wks in the hospital Thank God Bryson does not have Hirschsprungs, his heart seems to have no major issues, we go for another Echo in the morning.
I still have moments when I just want to cry, I suck it up though and try to accept the hand Ive been dealt. I love him dearly, he is super cute. But I still wish things were different. I also wonder if I will feel like this forever?
07-10-2010, 05:33 PM
Hey wlecome and no u won't! Do u have facebook? We could talk more I hardly get on here! But its hard to find me my name is jesseque james if u can't find me try a fellow parent with a child with ds denise wilson! We are all on there and we r one big famnily! We support each other and listen! If u wana talk more!
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